Thursday, December 5, 2019

Empty Glass


2019 has been one emotional roller coaster after another. It started off amazingly! We spent time with good friends in Las Vegas for the New Year. Then again for the most amazing wedding in Mexico in February. 

We started the journey to add to our family in May - I had been off my MS medication for three months. I thought I knew what I was in for, but the reality of this year has cut into my soul deeper than I thought possible. How tough was I?!?! Someone that could handle anything thrown at her. My friends and family continuously tell me how strong I am. 

But this year has cracked my foundation. I'm not strong. I'm not undefeated. I'm not tough. Let's talk about it. 

New MS lesion activity. The first active lesion in 4 years. 

Pregnancy. Exciting and terrifying! 

Miscarriage. 

Decision time: 4 options.


  1. Continue to try without DMD 
  2. Continue to try with a low risk DMD 
  3. Continue to try with a high risk DMD that will better regulate MS symptoms and progress but potentially cause injury to myself and fetus
  4. Stop trying and continue with previous medication
All while also considering how many children we want to have - it may be just one. Not a decision that needs to be made today, but should be soon. No pressure. 

So, let's talk about the photo. It's the drug I am considering right now, if I decide to go back on a DMD. Copaxone is a small synthetic protein, made to mimic a fragment of myelin. It consists of four amino acids, the building blocks of proteins, that are found in myelin.


It's the safest DMD to start taking while trying to conceive. Also. WTF is a DMD right?! DMD = Disease Modifying Drug. 


In the smallest amount of time, we have our entire future to decide. Give us all the good juju. My glass is empty, and it needs some good vibes <3